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Finally - NICE have published the rewritten guidelines
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Introduction The Norfolk and Suffolk Patient /Carer Group welcome the rewritten NICE Guidelines (NG206) for people with M.E. and CFS (Mya...
An Opportunity to Volunteer for Research
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The Quadram Institute on the Norwich Research Park held a public meeting last week to talk about their ongoing research into ME. Bar...
Specialist ME - CFS Clinic in Suffolk Suspended
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In order to meet the needs of moderately and severely affected patients in Suffolk, a Specialist ME - CFS Service w...
Meeting of the Joint Health Overview and Scrutiny Committee (HOSC) 26 October 2018 - Meeting Documents
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The documents for the meeting of the Joint HOSC on 26 October can be found here . The Patient / Carer Group is grateful to the Joint H...
Norfolk and Suffolk patients complain about the ME & CFS Service
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Patients from both Norfolk and Suffolk have made formal complaints to their local Clinical Commissioning Groups (CCG's) who purchase ca...
Response to the NICE draft scoping document on behalf of LocalME
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NICE are currently reviewing the guidelines for ME and CFS. LocalME have prepared a response to NICE's draft scoping document which yo...
Dr Luis Nacul, internationally respected ME clinician and researcher, to provide specialist care in Suffolk
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Suffolk Commissioning have released a statement today confirming that Dr Luis Nacul will be providing specialist care for patients in Suff...
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