Summary of points raised
- Needs assessment
- the numbers of patients that it is anticipated would use the service needs to be revised as it is lower than the current level of service use
- language needs to be more specific around the needs of the severely and very severely affected, prescribing, children and young people and training and improved information
- Current Clinic
- Further information requested from the PCT as information requested not received
- Norfolk NHS is the lead contractor and will push forward with the service specification
- Support given by the current service for benefits claims is valued
- Co-production of the new service is vital
- Funding for clinic in Stowmarket approved
- LINk
- Norfolk LINk can help with admin (meeting minutes and agenda) but do not have the resources to continue to support the group any further
- Suffolk LINk to be contacted
- Queries regarding the ME/CFS Service now to be sent to Norfolk NHS