Links

Local support groups:

• ME Support Norfolk
  
• Suffolk Youth and Parent Support Group
• Elevate - Support Group in Mid Norfolk
• West Norfolk Support Group
• Positive Pals - Felixstowe
• Chronic Fatigue Syndrome Unite! - Ipswich
• Bury St Edmunds / West Suffolk ME Group
• Local groups elsewhere in UK

Other Local Links:

• Healthwatch Norfolk
• Healthwatch Suffolk

Norfolk & Suffolk NHS:

• NHS Norfolk
• NHS Suffolk
• NHS Gt Yarmouth & Waveney

Clinical Commissioning Groups (CCG's) from April 2013

• Suffolk
• Norfolk & Waveney

Health Overview & Scrutiny Committees

• Norfolk
• Suffolk
• GY&W Joint Scrutiny

Also

• Suffolk Family Carers
• Norfolk Carers
• Norfolk Coalition of Disabled People
• Suffolk Coalition of Disabled People

National Organisations:

• Invest in ME
• ME Association
• ME Research UK
• 25% ME Group
• BRAME (Blue Ribbon for the Awareness of ME)

Other Links:

• Canadian Clinical Case Definition for ME/CFS
  
• International Consensus Primer for medical practitioners - Adult and Paediatric - October 2012
• Department of Health - National Service Framework for Long Term Neurological Conditions
  
• NICE Clinical Guidelines for ME/CFS
  
• Judicial Review of NICE Guidelines
• Hummingbirds Foundation for ME
• The European ME Alliance

Also worth a look:

• Care Quality Commission
• Patient Opinion 
• Benefits and Work 
• Disability Alliance
• Foggy Friends 
• The ME and CFS Information Page
• The Spoon Theory
• ME Association monthly surveys  
• The Truth About Penguins (and CFS research)

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This website has been set up by Patient and Carers to keep you in touch with the development of ME/CFS Services in Norfolk and Suffolk
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