ME/CFS Service Development Meeting 19/01/10

On 19 January 2010 NHS Norfolk, NHS Suffolk and NHS Gt Yarmouth & Waveney issued a joint statement providing a time-scale for implementation of the promises made on 11 November 2009.
Phase 1

To re-establish a service comparable to that prior to the changes made in 2004/5 including

  • Provision of a consultant acceptable to the Patient/Carer Representatives (Q1 to Q2 2010)
  • Expansion of the current service delivered by Gt Yarmouth & Waveney Provider Arm to more locations (Q2 2010)
  • Education of GP’s once consultant is in place and additional locations finalised (Q2 2010)

Phase 2

To begin with a full Needs Assessment and then develop a model of care with patients and carers fully involved as strategic partners. (Q3/4 2010) Specific issues to be addressed include:

  • Ongoing care
  • Domiciliary support
  • Guideline adoption
  • GP education
  • Consultant input including onward referral and prescribing rights
  • Social care issues

‘It is the intention of all three PCT’s that the development of services for ME/CFS will be a true partnership venture with patient and carers working with the PCT’s to create a world class service’