Meeting with NHS Commissioners 14 April 2016

A meeting with NHS Commissioners (from Suffolk, Norfolk & Gt Yarmouth & Waveney) and the Provider (East Coast Community Health) is planned for 14 April 2016.  Update is below.

We will be discussing:

  • Minutes from the previous meeting
  • The Action Log
  • Patient Experience
  • Service Development and Review
  • AOB
Please contact us if you would like our group to take any of your concerns or comments regarding the Norfolk & Suffolk ME & CFS Service to the meeting on your behalf.  

(The meeting that was planned for the 3 March 2016 was postponed with the agreement of the Patient / Carer Group due to the ongoing work to recruit a Consultant to lead the service)

Minutes for the meeting will be uploaded when agreed.


Representatives from the Patient / Carer Group and NHS Suffolk Commissioning attended this meeting.  However, representatives from the Provider, and Gt Yarmouth & Waveney CCG did not attend.  The representative from the Norfolk CCG's was unfortunately unable to attend due to personal reasons.

As a result this was not a formally processed meeting.  However, the meeting lasted the usual length and the Patient / Carer group was given the opportunity to raise issues of concern.

Work is ongoing to secure a consultant to lead the service in Norfolk and Suffolk.