ME & CFS Service Development Featured on BBC Radio Suffolk and BBC Radio Norfolk

 
On 15 August 2017 local Radio in both the Suffolk and Norfolk covered the devastating impact of ME & CFS, NICE Guidelines and Service Development.

Barbara Robinson, a Carer Rep on our group, gave interviews which were carried on both the local radio stations.  Barbara included thanks for Suffolk Commissioning who are continuing to work hard to develop the ME & CFS Service.

This is the link to the BBC Radio Norfolk programme which is available for 30 days from broadcast  

And this for BBC Radio Suffolk, again available for 30 days from broadcast.

The issues surrounding ME and CFS were included in the headlines throughout both of the Mark Murphy and Nick Conrad morning programs. 

You can find a transcript of the discussions on the ME Association website (with sincere thanks to Russell Flemming for his hard work on this). The MEA transcript also includes the times the items were broadcast so that you can skip forward to them if you wish.

Meeting with Suffolk Commissioning 13 July 2017


Representatives from the Patient / Carer Group met with Suffolk Commissioning on 13 July.  We were reassured that Suffolk Commissioning remains committed to developing the ME and CFS Service.

A meeting is to be convened between all of the 7 CCG's who commission the ME & CFS Service to decide how they are going to regroup and move forward.

When this meeting has been held a further meeting will be arranged to update the Patient / Carer Group.

The Patient / Carer Group has confirmed the action points from the meeting with Suffolk Commissioning.  These action points evaluation of the current level of equality of care for people with ME & CFS in our region, as recommended by the Joint Health Overview and Scrutiny Committee.