NHS Norfolk have held meetings with a ME/CFS Consultant to explore the possibility of providing an outreach service. The Consultant has been asked to provide a detailed specification of the service that could be provided and the facilities he would require.
GP's to be contacted for expressions of interest to expand the ME/CFS Service.
Work is under-way to identify further locations for ME/CFS clinics in Norfolk and Suffolk.
The existing service description to be disseminated around the group and reviewed in the light of comments from users and carers.
Further details here
ME/CFS: Joint HOSC 10/03/10
Work is ongoing to secure a consultant, to open clinics in towns in Norfolk and Suffolk and to address GP education. A formal needs assessment is to begin in September. The Committee expressed concern that the new service is still not in place. To be reviewed again at the July meeting.
For more details click here
For more details click here
ME/CFS Service Development Meeting 19/01/10
On 19 January 2010 NHS Norfolk, NHS Suffolk and NHS Gt Yarmouth & Waveney issued a joint statement providing a time-scale for implementation of the promises made on 11 November 2009.
Phase 1
To re-establish a service comparable to that prior to the changes made in 2004/5 including
- Provision of a consultant acceptable to the Patient/Carer Representatives (Q1 to Q2 2010)
- Expansion of the current service delivered by Gt Yarmouth & Waveney Provider Arm to more locations (Q2 2010)
- Education of GP’s once consultant is in place and additional locations finalised (Q2 2010)
Phase 2
To begin with a full Needs Assessment and then develop a model of care with patients and carers fully involved as strategic partners. (Q3/4 2010) Specific issues to be addressed include:
- Ongoing care
- Domiciliary support
- Guideline adoption
- GP education
- Consultant input including onward referral and prescribing rights
- Social care issues
‘It is the intention of all three PCT’s that the development of services for ME/CFS will be a true partnership venture with patient and carers working with the PCT’s to create a world class service’
ME/CFS: Joint HOSC 12/11/09
The evening before the Joint Health Overview and Scrutiny meeting NHS Gt Yarmouth & Waveney issued this document
The document accepted that the change to the service in 2005 was significant and that the needs of all people with ME/CFS in our area are not being met. The NHS proposed:
- to provide the current service in more locations across Norfolk and Suffolk
- Norfolk NHS to take the lead on the commission a new Consultant service
- to provide GP's training
When the Joint Health Overview & Scrutiny Committee met the next day deep concern was expressed regarding the extremely long delay in providing adequate services for all ME/CFS Patients. The Committee recommended that:
- An acceptable (to patients/carers) consultant led service be set up as soon as possible
- Progress would be reviewed after 12 months but any concerns identified by LINks in the meantime should be taken to the Committee
- As the views of the Patient/Carers were known a formal consultation would only delay matters further
- The importance of the views of service users in gauging success
For more details please click here
The document accepted that the change to the service in 2005 was significant and that the needs of all people with ME/CFS in our area are not being met. The NHS proposed:
- to provide the current service in more locations across Norfolk and Suffolk
- Norfolk NHS to take the lead on the commission a new Consultant service
- to provide GP's training
When the Joint Health Overview & Scrutiny Committee met the next day deep concern was expressed regarding the extremely long delay in providing adequate services for all ME/CFS Patients. The Committee recommended that:
- An acceptable (to patients/carers) consultant led service be set up as soon as possible
- Progress would be reviewed after 12 months but any concerns identified by LINks in the meantime should be taken to the Committee
- As the views of the Patient/Carers were known a formal consultation would only delay matters further
- The importance of the views of service users in gauging success
For more details please click here
ME/CFS Meeting 05/11/09
A meeting was held between Patient/Carer Representatives from Norfolk and Ian Ayres also NHS Norfolk. Ian Ayres confirmed that he will be contacting Commissioners from NHS Suffolk and NHS Gt Yarmouth & Waveney with a view to agreeing proposals for a way forward.
Joint HOSC 30 July 2009
The beginning of the Consultation was to be delayed until October 2009.
In the meantime the Joint Committee recognised that the service was not currently meeting the needs of 'a relatively small number of users'. The Committee wished to see NHS Gt Yarmouth & Waveney take immediate action to remedy this.
For more details please click here
In the meantime the Joint Committee recognised that the service was not currently meeting the needs of 'a relatively small number of users'. The Committee wished to see NHS Gt Yarmouth & Waveney take immediate action to remedy this.
For more details please click here
Gt Yarmouth & Waveney Board Meeting 24 June 2009
This document discusses the beginning of the consultation process.
Please note that contrary to what is stated in this document Patient/Carer Representatives did not agree that the January 2009 Gt Yarmouth & Waveney Draft Service Model should form the basis of the Consultation Document.
For more details please click here
Please note that contrary to what is stated in this document Patient/Carer Representatives did not agree that the January 2009 Gt Yarmouth & Waveney Draft Service Model should form the basis of the Consultation Document.
For more details please click here
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