- Matters arising
- Group concerned that they had not had feedback concerning complaints that had been passed on to the manager of the service
- Manager responded that some of the complaints were bound by confidentiality
- LINk can play an important role in complaints and areas of concern can be placed on a 'watch list', this role will be taken on by Health watch
- General Update
- At the beginning of October responsibility for Commissioning in Norfolk will pass to the Commissioning Support Unit, there will also be commissioning support in Suffolk
- The draft service spec has been taken to the CCG's and it is expected that they will agree to the specification sign off
- There was recognition that a consultant led service was needed and that there is work to be done around providing education for GP's
- Consultant
- Work is still being done to try and secure a biomedical consultant
- It is hoped that when the spec is signed off the provider will also help in the search for an appropriate consultant
- Current service
- There is an action plan in place to deal with complaints about the current service
- It was agreed that a user group to link in with the provider would be a good step forward and the manager of the service agreed to set this up
- Service Specification
- Aim to agree by the end of the meeting
- Amendments agreed by the group and amended version to be circulated by 21st Sept
- Final version to be circulated week commencing 1st October
- Plan B
- Brief discussion of what could be done if a consultant could not be identified to lead the service
ME/CFS Service Development Meeting 19/09/12
Summary of points raised